So this happened today guys. I was at work and had to rush home. I almost took her into our ER (again) but treated her at home with medications we had. Thank God for my patient and amazing friend (Josie’s babysitter). For staying calm, keeping me calm and staying to talk with me for a bit. I am grateful for you.
Food allergies are real! Allergens hide in everything. All she did was put a piece of chicken on her tray and her face started to swell. It started to move down her chest and then her nose started running and she was nasally. I was so worried about her airway. My worry never ends for this child. I worry about her 24/7. I barely sleep at night because I want to make sure she’s still breathing. How can I not when things like this happen? Everything she comes in contact with I worry about a reaction. I worry so much I’m seriously mentally exhausted. I am so so exhausted.
So to those moms/dads out there who are frustrated with the food restrictions allowed/not allowed in schools…please know that it may be inconvenient for you, but my daughters life depends on it. And so do so many others. She has scared me one too many times. And I have been lucky that it wasn’t worse.
It is SO hard to get her to eat foods. Let alone to even FIND something that is safe for her to eat. She’s picky because she’s thrown up way too many times. She’s smart and doesn’t trust the food.
I’m thanking God today for allowing me to work so close to home. To be able to come home. To have the knowledge of how to treat her in this type of situation. But what I struggle with is staying calm. My mind goes everywhere. I feel like I can’t catch my breath. I’m on the verge of a panic attack. I literally saw my life flash before my eyes today as ran out of work as fast as I could. “That’s my baby girl” I kept thinking. “She is my world.” The airway is nothing to mess around with. And Josie had already spent last weekend in the ER from RSV/Bronchiolitis. Poor thing. I wish I could take it all away.
This is probably the most difficult part of being Josie’s mom. Getting her the nutrition she needs and making sure it’s safe. I never stop worrying. Never.
As most of my friends and family know from the past that Josie has egg and dairy allergies. It seems to be a lot more than this now. Hopefully future testing can tell.
Has anyone ever heard of someone being allergic to chicken if they are allergic to eggs? Would that makes sense? I just don’t know. Any thoughts? Suggestions?
By the way…she’s doing better now. But here I am sitting up, mind racing and worried about her. I have already checked on her 3 times in her crib. Dear God…give me the strength.